Mobility of PwMS held even with #ukheat

It is simple to look at this in figures: 15 weeks in hospital for a PwMS and 13 months later doing my own physiotherapy rehab; my mobility has reached the point the medical and clinical staff of the NHS would have wanted me to be at! I am very pleased to say that they were wrong about Secondary Progressive Multiple Sclerosis (SPMS).

The fever I had ruined my mobility not the UK heatwave (#ukheat) as the Met Office describes it!

I can stand and transfer seats. I have managed this at 25^oC, yesterday near Bristol in the UK. It was 30^oC outside and Andy Murray might have been battling with a higher temperature in Wimbledon...It was important to remain in control of the footwork. I thought of the right position of my shoulders, hips and feet on the ground. Balancing my weight and reaching out at right time...

I held strong; cooling during some breaks but did all my transfers standing! I used two cool drink cans. One to replace the other. I am not saying cool as brand cool.
I also thought of my lavender cool eye pad. The PA left me with eye pad on and the second coolest can held on my shoulder with my neck. I moved it around the pulses. The PA had applied a can straight from the fridge to the top of my back before she left!

John came back and got me a iced lemon barley drink. I had a good night. This morning I transfered again standing.

The PAs are competitive and want to reach 10mns of standing. I had to be firm and say that 3mns standing with good stretches is cool!
I think they are pleased to know that they assisted me to reach this stage so they feel I know well when to exercise or not!

The cool cans of drink are back in the fridge!

BTW, in 1992 John and I did a trip to Germany, including the Baltic Coast in East Germany: I was already using the cool can method as it was a very hot continental heatwave that year!

Keep c%l = less fatigue